Events

“I’m 4.5 years post -transplant and am doing well. I can breathe without difficulty and no longer have to do the daily cystic fibrosis therapy regimen. I no longer cough and I was able to start yoga. [However] I have had several pneumonias, one started in July and wasn’t better until November.”
 — Lucy Fiorella,
Lung Transplant Recipient

THURSDAY, Feb 9, 2023, 7PM EST
Transplant Talk: Transplant, Chronic Illness, and Your Relationships

with Expert Speaker: Katie Willard Virant, MSW, JD, LCSW

Katie Willard Virant is a licensed clinical social worker and psychotherapist. She writes a monthly column for Psychology Today about living with chronic illness.

This Transplant Talk features a discussion on how chronic Illness challenges relationships. It’s no wonder that many wedding vows contain a promise to love one another “in sickness and in health.” Chronic illness affects, not only the person bearing the symptoms, but also the person loving them, living with them, and caring for them. As one partner expressed to me, “My wife lives with the illness, and I live with her. So, in a way, I live with the illness, too.”

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28 February 2023
Rare Disease Day at NIH 2023

This year’s event will be held in-person at the Natcher Conference Center on the NIH Main Campus with a virtual component for people who cannot attend in person. The event is free and open to the public.

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Wednesday, Oct 25, 2023
BOS Education Day

Join us on October 25, 2023, as we unite for BOS Education Day.

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Your Lungaversary®

A Lungaversary® is the annual recurrence of the date marking a person’s lung transplant. Lungaversaries are celebrated around the world, often with festivities such as a party, gifts, cards, donations to a charity or some other rite of passage.

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