Our mission is to improve the lives of lung transplant patients and their families.

Patience required

Be prepared for changes in mood and behavior. Chronic illness, the progressive worsening in breathing function, the uncertainty of the future, loss of independence, fears of the surgery and outcome, medications, fatigue and stress, pain, and discomfort can cause your loved one to become depressed and angry, even belligerent. Encouraging them to be as active and independent as possible will help them regain a sense of self-reliance and confidence. Think of yourself as a coach, explaining the needed activities and nudging or even demanding that your loved one take part. 

Ask for help when you need it. If keeping a positive outlook is difficult for you, seek help and support. As one charged with such intense duties, you may feel isolated, which is not uncommon among caretakers. A good support network is crucial here. Circles of relatives, friends, neighbors, and faith communities can provide the social connections and backup you need. It is important not to be isolated.

The constant stress of appointments, long days at the clinic, hospitalizations, and your loved one’s underlying life-threatening illness can take a toll. To offset some of the stress, take a reprieve from your caretaking responsibilities, stay physically active, take time to do an activity you enjoy, walk, meditate or pray, eat well, and rest. 

Make time for yourself and your personal needs.

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