Make an impact, share your BOS story
The backstory on why we need your story by Lung Transplant Foundation Executive Director, Amy Skiba Eighteen months, 3 weeks and two days. That is exactly how long our organization had been urging the FDA to let us hold an Externally-Led Patient-Focused Drug Development (or EL-PFDD) meeting. And finally, on June 22, 2022, it happened and […]
My role as caregiver started before the transplant
Hi! I’ve been asked to share some of my experiences as someone who has been a caregiver to a lung transplant recipient. My name is Pete and I live in Durham, NC, with my wife of just over 18 years, Jen. During this time I have been personally involved in her medical care as she […]
A Promise Kept – A Caregiver story
by Nelson Wills “Take care of Nicole.” Those are the last words my father in law, Gene Parris, said to me before he passed away at age 57 from a four-month losing battle with Pulmonary Fibrosis. Traumatic and sudden. Gene’s symptoms were an unproductive cough and shortness of breath. His final words were not […]
…We will always honor it…
“I think the biggest thing I want the (donor) family to know is how eternally grateful Jeff and I are for their gift and that we will always honor it. Everything we are doing to pay it forward with the Lung Transplant Foundation would make her really proud.” – Martha Austrich
What does it mean to celebrate my first year of breathing on my own
We asked one of our Facebook followers, Lisa, what it meant to celebrate her first year of breathing on her own after a double lung transplant on June 11, 2018. Lisa says, “I’m loving life again. I am so grateful for the donor and the donor’s family; they will forever be in my prayers.” Reflecting […]
This is a story of deep gratitude.
This is a story of deep gratitude. A story of a relationship with a donor’s family. “I am Jerry, and I received the gift of life with double lung transplant at IU Health Methodist Hospital in Indianapolis on June 2, 2015. In 2008 during a routine examination, scarring was noted on my lungs. A follow-up […]
More hope for more adventures, more tomorrows…
Laura – Transplanted 2014 Having a lung transplant allowed me to travel and see the places I love. The Lung Transplant Foundation gives me more hope for more adventures, more tomorrows. Support Lung Transplant Foundation A lung transplant transforms lives affected by diseases such as cystic fibrosis, pulmonary fibrosis, and COPD. These diseases affect more […]
I have been gifted nine years of wonderful life
“All you have to decide is what to do with the time that is given to you.” -Gandalf Because of my donor, I have been gifted nine years of wonderful life. Jess – Transplanted April 18, 2010 Support Lung Transplant Foundation A lung transplant transforms lives affected by diseases such as cystic fibrosis, pulmonary fibrosis, […]
The gift of life…
The gift of life has given me my life back. Deepest gratitude to my donor family forever & ever…. 2 years & 9 months post double lung transplant at UCLA! Maqsuda – Transplant date: 2016 Support Lung Transplant Foundation A lung transplant transforms lives affected by diseases such as cystic fibrosis, pulmonary fibrosis and COPD. […]
She never forgot when the nurse said: “It’s a go!”
In Memory Double Lung Transplant Recipient. Maria was from Caracas, Venezuela. In April 2007, Maria was diagnosed with Systemic Scleroderma. At 35 years old, Maria had already survived atypical viral pneumonia, chronic encephalitis and several days in a coma. Systemic Scleroderma is a rare autoimmune, degenerative and incurable disease that causes Pulmonary Fibrosis and Pulmonary […]